Jesy Nelson shared a snap of her twin daughters Ocean and Story’s spinal braces as she urged fans to attend the Parliament debate on SMA screening.
The singer, 35, revealed in January that her now one-year-old twins had been diagnosed with SMA Type 1, a rare muscle-wasting condition.
The late diagnosis means her daughters are likely to never be able to walk and have specialist equipment to help them breathe at night, as well as feeding tubes.
The singer has campaigned tirelessly for the NHS to expand its screening to check for spinal muscular atrophy after birth following her own experience with her daughters
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