Jesy Nelson has revealed that she’ll be heading to Parliament on Monday for a debate on ‘life-changing’ SMA screenings – as she tearfully blasted the ‘postcode lottery’ of the October roll-out of the NHS scheme.
The singer, 35, revealed in January her now one-year-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition.
The late diagnosis means her daughters are likely to never be able to walk and have specialist equipment to help them breathe at night as well as feeding tubes.
The singer has campaigned tirelessly for the NHS to expand its screening to check for
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