Jesy Nelson has revealed she’s ‘cried all day’ because her twins have to wear a spinal jacket and splints during the heatwave following their SMA diagnosis.
The singer, 35, revealed in January her 14-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1.
Spinal Muscular Atrophy is a rare, inherited genetic disease that damages motor neurons in the spinal cord.
In a heartbreaking Instagram post on Friday, Jesy told fans her twins have to wear the jacket and splints to prevent deterioration.
She wrote: ‘I’ve cried all day. Imagine having to wear a spinal jacket and splints in this heat. I cannot even begin
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